Comments on: An open mind http://genomeboy.com/2007/09/10/an-open-mind/ Wed, 07 Jan 2009 01:14:07 +0000 http://wordpress.org/?v=2.2.1 By: genomeboy.com | Warts and all http://genomeboy.com/2007/09/10/an-open-mind/#comment-42 genomeboy.com | Warts and all Fri, 14 Sep 2007 03:35:15 +0000 http://genomeboy.com/2007/09/10/an-open-mind/#comment-42 [...] Berci comments: “Personally, I wouldn’t like to know about my ApoE status as long as there are no treatments... [...] […] Berci comments: “Personally, I wouldn’t like to know about my ApoE status as long as there are no treatments… […]

]]> By: Pack of Sensations » Blog Archive » Personalized Genetics: DNA 2.0 and the best thoughts on our genome http://genomeboy.com/2007/09/10/an-open-mind/#comment-41 Pack of Sensations » Blog Archive » Personalized Genetics: DNA 2.0 and the best thoughts on our genome Thu, 13 Sep 2007 14:33:59 +0000 http://genomeboy.com/2007/09/10/an-open-mind/#comment-41 [...] Angrist, one of the lucky subjects in George Church’s Personal Genome Project, has a great post on your genes and Alzheimer’s disease. Would you like to know about your ApoE4 status as long as there are no treatments? Questions like [...] […] Angrist, one of the lucky subjects in George Church’s Personal Genome Project, has a great post on your genes and Alzheimer’s disease. Would you like to know about your ApoE4 status as long as there are no treatments? Questions like […]

]]> By: Personalized Genetics: DNA 2.0 and the best thoughts on our genome « ScienceRoll http://genomeboy.com/2007/09/10/an-open-mind/#comment-40 Personalized Genetics: DNA 2.0 and the best thoughts on our genome « ScienceRoll Thu, 13 Sep 2007 12:26:08 +0000 http://genomeboy.com/2007/09/10/an-open-mind/#comment-40 [...] Angrist, one of the lucky subjects in George Church’s Personal Genome Project, has a great post on your genes and Alzheimer’s disease. Would you like to know about your ApoE4 status as long as there are no treatments? Questions like [...] […] Angrist, one of the lucky subjects in George Church’s Personal Genome Project, has a great post on your genes and Alzheimer’s disease. Would you like to know about your ApoE4 status as long as there are no treatments? Questions like […]

]]> By: Berci Meskó http://genomeboy.com/2007/09/10/an-open-mind/#comment-39 Berci Meskó Thu, 13 Sep 2007 07:08:45 +0000 http://genomeboy.com/2007/09/10/an-open-mind/#comment-39 A solution could be if the geneticist (e.g. in a company focusing on personalized genetics) would ask the patients what kind of genes/diseases they'd be interested to hear. Personally, I wouldn't like to know about my ApoE status as long as there are no treatments... Great post! A solution could be if the geneticist (e.g. in a company focusing on personalized genetics) would ask the patients what kind of genes/diseases they’d be interested to hear.

Personally, I wouldn’t like to know about my ApoE status as long as there are no treatments…

Great post!

]]> By: Steven Murphy MD http://genomeboy.com/2007/09/10/an-open-mind/#comment-38 Steven Murphy MD Mon, 10 Sep 2007 23:59:28 +0000 http://genomeboy.com/2007/09/10/an-open-mind/#comment-38 The day will come when this identification WILL lead to prevention. Until that day fear will abound. I admire you. -Steve www.thegenesherpa.blogspot.com The day will come when this identification WILL lead to prevention. Until that day fear will abound. I admire you.
-Steve
www.thegenesherpa.blogspot.com

]]> By: Dana Waring http://genomeboy.com/2007/09/10/an-open-mind/#comment-37 Dana Waring Mon, 10 Sep 2007 23:07:26 +0000 http://genomeboy.com/2007/09/10/an-open-mind/#comment-37 It will be curious to see what kinds of patterns emerge as people start getting their genomes done, and are faced with the questions of what they would like to keep a secret from themselves, from researchers, from any sort of public database that would intentionally link them to their sequence. What will be the most common things people don't want to know? I had been thinking more about things like sexual & reproductive history. Alzheimer's is a great example - something that compromises both mind and body, with lots of fear and social stigma as well.... It will be curious to see what kinds of patterns emerge as people start getting their genomes done, and are faced with the questions of what they would like to keep a secret from themselves, from researchers, from any sort of public database that would intentionally link them to their sequence. What will be the most common things people don’t want to know? I had been thinking more about things like sexual & reproductive history. Alzheimer’s is a great example - something that compromises both mind and body, with lots of fear and social stigma as well….

]]> By: Hsien Lei http://genomeboy.com/2007/09/10/an-open-mind/#comment-36 Hsien Lei Mon, 10 Sep 2007 22:31:32 +0000 http://genomeboy.com/2007/09/10/an-open-mind/#comment-36 I still remember when Ronald Reagan was diagnosed with Alzheimer's. He wrote that farewell letter to the nation in 1994 and was never seen in public again and few were allowed to see him in person. So sad. Does this mean when we develop the disease we receive no comfort from anyone? I'd like to think that I wouldn't keep it a secret because for as long as I possibly could, I'd want to spend time with people I love. :( I still remember when Ronald Reagan was diagnosed with Alzheimer’s. He wrote that farewell letter to the nation in 1994 and was never seen in public again and few were allowed to see him in person. So sad. Does this mean when we develop the disease we receive no comfort from anyone? I’d like to think that I wouldn’t keep it a secret because for as long as I possibly could, I’d want to spend time with people I love. :(

]]>