Mi DNA, su DNA
Two caveats on the PGP consent form: our genomes could be used to a) claim [our] relatedness to infamous villains and (b) make synthetic DNA and plant it at a crime scene. I was reminded of these by Ari Shapiro’s excellent series on NPR, The Ethics of DNA Use. Some money excerpts from Part I:
Law-enforcement groups like to say that giving police a DNA sample is no different from giving police your fingerprint, but Tania Simoncelli of the ACLU says DNA is far more personal than a fingerprint. A DNA sample “contains a great deal of information. It could be about susceptibility to disease, as well as your family history,” Simoncelli says. “This is private, personal information about you that goes far beyond just your identification.”
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Courts have said little about how much of a right people have to keep…genetic material private…”Traditionally, the law has been that if you abandon your DNA, you lose it,” says Barry Scheck, co-director of The Innocence Project.
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The Washington Supreme Court ruled six to three that “police are allowed to use some deception, including ruses, for the purpose of investigating criminal activity.”
“No recognized privacy interest exists in voluntarily discarded saliva,” the court found.
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But let’s not forget to give props to phenotypes:
…[A]s Harvard professor and DNA expert David Lazer points out, police can learn at least as much about us through other means as they can through our DNA.
“One could build a very detailed profile of every single individual based on the information they make freely available through credit card use, through cell phone use, through paying taxes and the like,” Lazer says. “It’s very difficult to hide in this life that we live in the grid.”
I work as an Assistant Professor in the Duke University Institute for Genome Sciences & Policy (although this site and its content are my own).
In 2007 I became the fourth subject in Harvard geneticist George Church's Personal Genome Project. As the PGP moves forward, I am chronicling the dawn of personal genomics, that is, people obtaining their genomic information for whatever reason(s) and figuring out what to do with it. I am interested in the relevant technologies and especially the attendant privacy and other ethical/legal/social issues.
This blog may also discuss some of my non-genome interests or, to paraphrase Dwight Yoakam, "Guitars, Cadillacs, hillbilly music, etc etc."
The header image comes from the Liz Lerman Dance Exchange's multimedia performance piece, "Ferocious Beauty: Genome."
December 13th, 2007 at 1:06 pm
In terms of Lazer’s comment, it seems to me that an accused criminal could argue identity theft much more easily than they could deny a finding of their DNA on/near a victim’s body.
“Someone stole my wallet and cell phone, rented a car in my name, drove to kentucky, checked into the Honky Tonk Inn in my name and then killed a local waitress, wasn’t me”.
As opposed to, “we found your DNA all over the crime scene…”
Perhaps I am missing something…
December 13th, 2007 at 2:10 pm
I think his comment was less about actually catching bad guys and more about the various ways Big Brother can potentially get all up in your business. In other words, would you rather have the cops sifting through your DNA or reading your email and phone records? I’m not excited about either one, but I’m definitely less excited about the latter.
December 13th, 2007 at 8:12 pm
Ahh, warrantless wiretapping…