Comments on: Alzheimer’s on a need-to-know basis… http://genomeboy.com/2007/12/25/youre-going-to-lose-your-memory-and-die-so-why-the-long-face/ Sun, 12 Oct 2008 14:02:59 +0000 http://wordpress.org/?v=2.2.1 By: genomeboy.com | Topical depression http://genomeboy.com/2007/12/25/youre-going-to-lose-your-memory-and-die-so-why-the-long-face/#comment-716 genomeboy.com | Topical depression Wed, 09 Jan 2008 13:51:18 +0000 http://genomeboy.com/2007/12/25/youre-going-to-lose-your-memory-and-die-so-why-the-long-face/#comment-716 [...] chimes in in the comments section of the previous post on the potential value of knowing one’s genotype: …there are many reasons why someone [...] […] chimes in in the comments section of the previous post on the potential value of knowing one’s genotype: …there are many reasons why someone […]

]]> By: Jason Bobe http://genomeboy.com/2007/12/25/youre-going-to-lose-your-memory-and-die-so-why-the-long-face/#comment-710 Jason Bobe Mon, 07 Jan 2008 01:07:11 +0000 http://genomeboy.com/2007/12/25/youre-going-to-lose-your-memory-and-die-so-why-the-long-face/#comment-710 I spoke at a personalized medicine conference this past year. In my talk I mentioned Alzheimer's disease. In the Q+A, a physician made a comment about how idiotic is would be to the learn about genetic predisposition to Alzheimer's disease since no good therapies existed. My response was that there are many reasons why someone might want to learn about predisposition to disease, even when therapies are not available. Including disease advocacy (i.e. joining a "race for a cure"), or in the specific case of Alzheimer's, behavioral modifications like the avoidance of contact sports. Later in the Q+A, Robert Green, who happened to be in the audience, stood-up and offered a voice of support to my line of reasoning. His research project is called the <a href="http://www.bu.edu/alzresearch/research/genetics/reveal/index.html" rel="nofollow">REVEAL</a> study. The physician made the comment approached me after the session and said that he was merely playing the role of the "devil's advocate". What is clear to me, is that this devil will continue to advocate for a long time to come and that there is a need for balancing points of view that still have not made it into the consciousness of experts. Nice post. Jason I spoke at a personalized medicine conference this past year. In my talk I mentioned Alzheimer’s disease. In the Q+A, a physician made a comment about how idiotic is would be to the learn about genetic predisposition to Alzheimer’s disease since no good therapies existed.

My response was that there are many reasons why someone might want to learn about predisposition to disease, even when therapies are not available. Including disease advocacy (i.e. joining a “race for a cure”), or in the specific case of Alzheimer’s, behavioral modifications like the avoidance of contact sports.

Later in the Q+A, Robert Green, who happened to be in the audience, stood-up and offered a voice of support to my line of reasoning. His research project is called the REVEAL study.

The physician made the comment approached me after the session and said that he was merely playing the role of the “devil’s advocate”. What is clear to me, is that this devil will continue to advocate for a long time to come and that there is a need for balancing points of view that still have not made it into the consciousness of experts.

Nice post.

Jason

]]> By: Pack of Sensations » Blog Archive » Gene Genie #23: Paradise of Genomics http://genomeboy.com/2007/12/25/youre-going-to-lose-your-memory-and-die-so-why-the-long-face/#comment-709 Pack of Sensations » Blog Archive » Gene Genie #23: Paradise of Genomics Sun, 06 Jan 2008 23:41:47 +0000 http://genomeboy.com/2007/12/25/youre-going-to-lose-your-memory-and-die-so-why-the-long-face/#comment-709 [...] must agree with the opinion of Misha Angrist at Genomeboy: God forbid an Alzheimer’s diagnosis ever bums anyone [...] […] must agree with the opinion of Misha Angrist at Genomeboy: God forbid an Alzheimer’s diagnosis ever bums anyone […]

]]> By: Gene Genie #23: Paradise of Genomics « ScienceRoll http://genomeboy.com/2007/12/25/youre-going-to-lose-your-memory-and-die-so-why-the-long-face/#comment-708 Gene Genie #23: Paradise of Genomics « ScienceRoll Sun, 06 Jan 2008 21:41:25 +0000 http://genomeboy.com/2007/12/25/youre-going-to-lose-your-memory-and-die-so-why-the-long-face/#comment-708 [...] must agree with the opinion of Misha Angrist at Genomeboy: God forbid an Alzheimer’s diagnosis ever bums anyone [...] […] must agree with the opinion of Misha Angrist at Genomeboy: God forbid an Alzheimer’s diagnosis ever bums anyone […]

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