Genetic Future (about which I can’t say enough good things) points to Jennifer Couzin’s Science article on genetic risk:
Some concerns about the public’s reaction have already eased. Two years ago, behavioral epidemiologist Colleen McBride and human geneticist Lawrence Brody, both at the National Human Genome Research Institute, began examining how healthy individuals respond to disease risk information. They offered volunteers in Detroit, Michigan, the chance to learn whether they carried deleterious variants for eight health conditions, including diabetes, colon cancer, and osteoporosis. Because the variants are common, virtually everyone was expected to harbor at least a couple. Those monitoring the study’s safety “were really worried, literally, that people were going to jump off bridges” when they learned that their risk of disease was increased, says McBride.
Among the 300 or so who have participated, that hasn’t happened–quite the opposite. “They’re not having big emotional responses,” says McBride.
If that’s true–as it appears to be in Alzheimer’s as well–then how does that jibe with the “people-will-freak-out-if-you-tell-them-so-don’t” argument?