My hero zero
I’m a bit late on this (anyone who has visited this site knows punctuality is not my forte), but the Personal Genome Project is among the early adopters of the new Creative Commons vehicle for surrendering copyright:
CC0 (read “CC Zero”) is a universal waiver that may be used by anyone wishing to permanently surrender the copyright and database rights they may have in a work, thereby placing it as nearly as possible into the public domain. CC0 is not a license, but a legal tool that improves on the “dedication” function of our existing, U.S.-centric public domain dedication and certification. CC0 is universal in form and may be used throughout the world for any kind of content without adaptation to account for laws in different jurisdictions.
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Another early adopter of CC0 is the Personal Genome Project, a pioneer in the emerging field of personal genomics technology. The Personal Genome Project is announcing today the release of a large data set containing genomic sequences for ten individuals using CC0, with future planned releases also under CC0. “PersonalGenomes.org is committed to making our research data freely available to the public because we think that is the best way to promote discovery and advance science, and CC0 helps us to state that commitment in a clear and legally accurate way,” said Jason Bobe, Director of Community.
I work as an Assistant Professor in the Duke University Institute for Genome Sciences & Policy (although this site and its content are my own).
In 2007 I became the fourth subject in Harvard geneticist George Church's Personal Genome Project. As the PGP moves forward, I am chronicling the dawn of personal genomics, that is, people obtaining their genomic information for whatever reason(s) and figuring out what to do with it. I am interested in the relevant technologies and especially the attendant privacy and other ethical/legal/social issues.
This blog may also discuss some of my non-genome interests or, to paraphrase Dwight Yoakam, "Guitars, Cadillacs, hillbilly music, etc etc."
The header image comes from the Liz Lerman Dance Exchange's multimedia performance piece, "Ferocious Beauty: Genome."